Friday, December 30, 2011

Last one for this round, next week rest:)

Today was treatment#3 of this round, #12  overall, since the beginning.  I'm a pro now; so funny, i get a different nurse almost every time and i always have to state my case for why i want/need a liter of fluids while I'm waiting.  It's not standard protocol, standard seems to be to hang a 250ml bag of saline and have that drip in through my port whenever there's nothing else like pre-meds or chemo or just waiting for the lab to release my meds.  But, I learned a long time ago that i am chronically dehydrated, and my Zometa treatment dehydrates me further, and chemo dries out everything (my eyes, my nose) so i always ask the nurse to hang 1 liter of saline instead.  It's always an issue.  Not their fault, they just want to follow protocol, but part of me is screaming inside, "It's just saline!!  it's probably almost free!! it helps to hydrate me and helps me feel better!! just do it!!!" ah well, held my tongue and let them go thru proper channels to get it approved, and got my fluids  woohoo!!

I saw the nurse practitioner today too, they sent my blood in to test my markers, so next week we might see another drop if the chemo is still doing  kick-ass job:) The swelling in my left ankle is down, now I'm just generally puffy which makes everyone happy cuz that's expected with taxol and steroids.

Last week I didn't post - Christmas and all:) I had chemo, Ann-Marie was my angel and even brought me a present:) she's a doll and i'm so thankful to her and all my friends who make this weekly poison a little bit fun! I ran into my friend G who was diagnosed approximately the same time as me with similar diagnosis, so we are good for each other ...she knows my journey better than most because she's on a similar path.  It's awesome to talk with her and feel the support she sends my way, and to be able to give it right back:)  It's always fun to focus on someone else...I bore myself!!

Hope everyone had a great holiday, and have a wonderful new year.  RIT knows how to make the yule tide gay; I have 3 weeks off over the holidays and it's like heaven to be off, sleeping and watching tv:), doing marathon movie days at the $2 theater with Alex- doesn't get any better:)

4 comments:

  1. Really feel bad about not seeing you and the rest on Christmas Eve..:( But hope you all had a rollicking good time! ("rollicking"??..what era am I in??)
    Loved seeing NYC pics!So glad you had a great time! And those of us with "cankles" are glad they are just from over-eating and not due to the trials you are experiencing!
    Love you XOXO

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  2. Watch some movies for me! Introduce Alex to some golden oldies. Glad things are progressing and you had a good holiday. Love ya. - Chris

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  3. Carol Beth!!! How are you feeling?? Please send me an email to jen.hayes@me.com so i have your contact info and i can harass you!! Love you!! xoxoxo jen

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  4. I heard about the movies from Alex :) Popcorn & the movie theater - bet u had rockin kankles after that :) xx

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