Monday, June 10, 2013

Halaven

Alrighty, here we go again:) As suspected form my numbers, the last med hasn't been working, so I hafta go on a chemo called Erubulin or Halaven.  My onc went over the scans with me today, and Colleen came with me just for fun:) The scans showed definite disease progession, especially in my liver (15 spots) and in my bones, most in my spine.  I'm not surprised, I've had some pain in my upper back for the last 3 weeks or so.  I'm going to see a spine specialist later this week, see what they see and if they can help with the pain.  
I'm also switching to a new bone-building med called Denosumab; the onc is worried I've been on Zometa too long, something about a risk of paradoxical fracture.   If anyone has any experience with either Eribulin or Denosumab, I'd love to hear, especially about side effects.  The side effects I've read about so far for Eribulin are the typical chemo ones; fatigue, nausea, hair loss.  I'm ok, happy there are still options to keep trying, and hopeful that this one will work for awhile.  Thanks for checking on me!! And thanks for going with me, Col:) Love you.

7 comments:

  1. Thinking of you all summer and wishing you many pain free moments.

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  2. Sending good vibes your way!

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  3. thanks for the update. I always wonder how you are doing but figure you probably get tired of being asked that question. :) I'm praying for you and your family as you navigate this new treatment. Hugs.

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  4. I know I'm suppose to say something nice and all but...THIS SUCKS !!!But you know I love you and am always praying for the best.XOXO

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  5. I've needed time to process this oncology visit with Jen. I feel fortunate Will happened to be out of town and I was able to go with her. Her team of nurses and doctors are amazing. Her doctor is off the charts fantastic - she's incredibly knowledgeable, calm, caring and it felt like she would have spent all day with us if that was what was needed. Jennifer is definitely getting the best possible care. It was fascinating to see the 3D image of all the cancer spots and see how many "glowed" If anyone is wondering, you can be assured Jennifer has has inner glow :-)

    I know Jen was expecting to hear the treatment she was on was not working and warned me of that - but honestly I was taken back by the number of spots on her liver. As we were leaving the appt. I asked her how she truly felt - she quickly replied "When she tells me I have lots of options its a good day." The new treatment Jen is starting has been on the market for less than 2 years. Jen was diagnosed almost 6 years ago. I am humbled by Jen's ability to always find a silver lining.

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  6. Now you're just making sh!t up. All of those medications sound like they're for fake commercials on SNL ;)

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