Sunday, May 27, 2012

Xeloda is workin!

News from PET scan is awesome, the oral chemo med Xeloda is doing its job and getting my spots under control:) my onc very happily told me last week that several of the spots that were hyper metabolic last scan are much less so, or completely gone leaving just a scar behind. Now that's not to say the cancer is gone, it's just kicked back to a lower gear for now while it figures out a way past the xeloda. With a little luck, I'll be able to stay on this med for awhile, it'll keep working and the side effects will stay manageable. Right now it's just desert dry hands and feet, lovely and scaly and ugly ripped off nasty lookin toenails. I've considered saying I'm a ballerina or a marathon runner to explain them- so much sexier than cancer! I'll have PET scans every 3 months to make sure it's still working. Even the lesions on my liver, the ones that worry me the most, are responding well. Yahoo! I'm struggling with my hip the last few weeks. At first I thought it was my knee, then the rod in my femur, finally pinpointed the pain to my hip and then it kinda radiates from there. I can hear the screw or pin or whatever it is clicking and sometimes it reaches out and grabs me and the pain is intense- takes my breath away. But then it goes away and I'm fine...weird. Have dr appt with orthopedic onc on Wednesday, so I'm looking forward to finding out exactly what's wrong and how soon can they fix it cuz its no fun hobbling around. Makes me feel old!! Anyway, send some good thoughts on Wednesday if you think of it, I'm hoping it's muscular and I just need some physical therapy or something easy...no surgery. Thanks!

3 comments:

  1. I was so glad to hear the news!Now,if we could just kick those blasted side effects!XOXO

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  2. Good news Jenny! I vote physical therapy on the leg issue! ;)Positive thoughts your way on Wed!

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  3. Jen, That is fantastic news. As far as the toes and feet go, I would tell people that you are a coach for the barefoot marathon team and you lead by example: hence the roughness on the feet.

    Tons of positive thoughts sending your way every day PLUS Wednesday.

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