Numbers look good!

One of the ways we monitor the cancer is thru tumor markers, 2 different numbers that, for me, seem to reflect fairly accurately  how well the current medicine is working. And, so far, every month they've come down by half, so everyone at my appointment yesterday was all smiles:) me too.
I had my Eribulin treatment yesterday, as well as a prescription for an antibiotic cream for my poor scalp.  Helped, but hasn't cured it yet, so I'm trying to be patient:) I have the day completely off today, so am looking forward to taking it easy - even did my Wegmans run yesterday so i wouldn't have to do it on my day off:) Woo hoo, thanks everyone for sending hugs and positive thoughts, they help more than you know!!

@#$% folliculitis!!!

Never heard of it?:) I have! Last time I lost my hair, same thing happened.  All the little hair follicles on my scalp are inflamed, sensitive and sore!!! Sometimes it seems like it just never ends; isn't losing my hair enough? Now my head has to hurt too? Ugh.  At least this time I know what it is, last time I just thought I was luckier than most and had pimples on my head.  Actually, the chemo is seeping out through my pores (making my skin dry) and thru my hair follicles (making it sore, cuz it's POISON!) The fun just never stops, and I just keep getting sexier!!!

One bright spot is a little prezzy i got in the mail from my favorite charity, Human Touch Initiative with gift certificates for massages :) Woohoo! Thank you baby sister Suzi and Curt; hope Ginny can fit me in this week! Another was having dinner with Bob and Robyn at the lake house, delicious dinner and gorgeous views, plus people I love...awesome.

Soooo sleepy

I'm having a rough week, within an hour after I wake up I'm ready to go back to bed. Afternoons are especially nap inducing, it's crazy. I literally could stay in bed all day. Last week on top of my chemo I had my monthly shot of xgeva which really hurts my spine, so as that wears off, thank goodness, I'm left exhausted. Ugh. Hoping this gets better so I can get up off the couch!

Twins?!!

Do we look like twins? :) That's my Dad! Back to being bald again, little sad, but relieved to not be constantly plucking hair off of myself and everything around me.  The whole family gathered in the master bedroom and watched Will do the honors last night.  I bet Edie's boyfriend never expected such an exciting evening! Feels good, just chilly! Luckily still have all of my hats from last time (thanks Suzi!) and I'm scoping out a new one on Etsy now:) Good excuse to be stylish!

Bye bye curls:(

Yup, time to face the facts, I'm losing lots of hair every time I shower, or touch my hair, or shake my head... It's really annoying, little pieces of hair everywhere, impossible to deny. I don't think people can tell yet, but it's such a mess I may have Will take care of shaving it off for me when we arrive home from vacation tmw. Even Will, who constantly tells me it's no big deal, has admitted it's time. So, I'll probably have a good cry and just get on with it. Shit. Break out the bandanas, Gillies!!

Halaven, Round 2

Hi:) I had another dose of Halaven this morning and am riding in the truck on the way to WV and no nausea:) so that's good! My hair is thinning and my legs are swollen... In many ways I feel like I've turned 70, not bad for someone with a fatal illness!! My white blood cell count is low, so I'll have to start daily injections of Neulasta next week... The fun never stops! Keep sending me good vibes; we are on vacation this week in WV glamping it up:)