PET scan results are bad, doc said significant diffuse progression, liver, spine, pelvic bones. NOT what we wanted to hear. So, no more Xeloda, she's considering 3 different meds, taking the time between now and next appointment 11/29 to determine which one best for me. If you feel like doing some research, I'd love to hear what you find! The 3 options are: Ixabepilone (Ixempra), Eribulin, and Doxil. Apparently the Doxil is one of the chemos that there has been a recent shortage of (good english i know), so that may be off the table - see what the pharmacy says. I've been checking my support group website, Inspire.com, for other folks' experience with these drugs, and it sounds like Ixempra is pretty rough on the body. Off to check on the other 2 now.
As always, I need your good vibes:) My numbers were up last week, so i had a feeling this was coming, but it's still shocking to know i've blown thru another treatment, from a limited list of possible meds that keep me alive. Please keep us in your prayers.
Jen Jen..my research(very limited..not to bright!) has positive results for doxil is good. How can it be in short supply?! All the damn money on research, etc!?..stay positive and know we love you and more prayers for you…dad and july
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ReplyDeleteSigh. So sorry to hear the scan results were so yucky. Having such a strong support group can be very helpful as we combine our resources and energies to send our love and caring thoughts your way.
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ReplyDeleteWondering what Doxil is made from that makes it in short supply.
ReplyDeleteHugs...prayers...hugs...prayers...lots of love...always...