Monday, October 21, 2013

Ugh

My team isn't happy and now neither am I:( I had such a nice weekend in denial, Edie is home for long weekend and we had family dinners and a little shopping, dinner with Leslie and Chris and the babies, gorgeous fall weather.  Now, I'm at my Eribulin appointment and nobody's happy with my markers.  My next PET scan was supposed to be in November, they want to move it up to as soon as possible, they think the Eribulin isn't working anymore. Sigh.
I'm glad I'm getting my eyebrows done on Friday, something positive to look forward to! Almost everyone said my right eyebrow was a better fit for my face, so I'm going with that (since that was my opinion too!) I'm a little concerned about the color of the ink, but Will is coming with me, he will make sure it's perfect:)
Send me some love and prayers, something tells me I'm gonna need it with this PET scan.

Tuesday, October 8, 2013

Eyebrow tattoo?

Left or right? :)


So after losing my eyebrows to the chemo fairy again, I've decided to take the plunge and have them tattooed back in:) Colleen and I went to a medical spa last Friday and they drew on the above samples with eyebrow pencil so I could get a good idea of what they would look like...opinions, please! I have an appointment for the tattoos on Oct. 25.
Am feeling well; the second week (now) is always the hardest one of the 3 week cycles, so I'm tired but not too bad.  I love Fall, so the chillier overnights and mornings make me happy:)


Friday, September 20, 2013

Day of rest:)

I called in sick today, last night i decided i really need a full day off with absolutely nothing to do except rest and watch tv:) Thank goodness for RIT's generous sick leave policy, I'm really grateful on days like today. It's the end of the 4th week at RIT, and I've been able to keep up with my schedule so far:)
I'm feeling pretty wiped out, tho, just in general, achy and sore, and the stairs at RIT are killing me! It feels like I'm dragging 500 pounds up them! Oh well, a long weekend will hopefully give me my energy and spirit back!
Eribulin is still my friend, although I noticed that one of my numbers was slightly elevated last week, no longer going down, so it may be that it's not working for me any longer, but I won't find out til November PET scan.
My hair is slowly growing in, very thin tho, and i think i lose as much as grows in! Also, my eyelashes and eyebrows have fallen out as well and aren't growing back yet.  I remember the same thing happened before, and losing my eyebrows really changes my face!  Colleen and I have an appointment Oct 4 to find out about getting my eyebrows permanently tattooed on...sounds expensive but i think worth it to make me feel more comfortable:)
Anyway, just wanted to update that I'm feeling ok in general, just need some rest and I'm going to go take a nap! Thanks to Leslie and Chris for bringing baby Lia into the world last week; there's nothing like holding a brand new baby to give me hope for the future!
Thanks as always for all the prayers and good wishes.  Jen

Tuesday, August 27, 2013

It's all good:)

Second treatment of this cycle yesterday, and today I'm feeling well.  RIT just started back up again, so I was worried about working full time through treatment, but so far so good:) I feel kinda hungry, kinda nauseated but nothing too bad.
I'm hoping to go get a massage this week, if I can fit it in.  Thanks for all the well wishes!:)

Tuesday, July 30, 2013

Numbers look good!

One of the ways we monitor the cancer is thru tumor markers, 2 different numbers that, for me, seem to reflect fairly accurately  how well the current medicine is working. And, so far, every month they've come down by half, so everyone at my appointment yesterday was all smiles:) me too.
I had my Eribulin treatment yesterday, as well as a prescription for an antibiotic cream for my poor scalp.  Helped, but hasn't cured it yet, so I'm trying to be patient:) I have the day completely off today, so am looking forward to taking it easy - even did my Wegmans run yesterday so i wouldn't have to do it on my day off:) Woo hoo, thanks everyone for sending hugs and positive thoughts, they help more than you know!!

Saturday, July 27, 2013

@#$% folliculitis!!!

Never heard of it?:) I have! Last time I lost my hair, same thing happened.  All the little hair follicles on my scalp are inflamed, sensitive and sore!!! Sometimes it seems like it just never ends; isn't losing my hair enough? Now my head has to hurt too? Ugh.  At least this time I know what it is, last time I just thought I was luckier than most and had pimples on my head.  Actually, the chemo is seeping out through my pores (making my skin dry) and thru my hair follicles (making it sore, cuz it's POISON!) The fun just never stops, and I just keep getting sexier!!!

One bright spot is a little prezzy i got in the mail from my favorite charity, Human Touch Initiative with gift certificates for massages :) Woohoo! Thank you baby sister Suzi and Curt; hope Ginny can fit me in this week! Another was having dinner with Bob and Robyn at the lake house, delicious dinner and gorgeous views, plus people I love...awesome.

Wednesday, July 24, 2013

Soooo sleepy

I'm having a rough week, within an hour after I wake up I'm ready to go back to bed. Afternoons are especially nap inducing, it's crazy. I literally could stay in bed all day. Last week on top of my chemo I had my monthly shot of xgeva which really hurts my spine, so as that wears off, thank goodness, I'm left exhausted. Ugh. Hoping this gets better so I can get up off the couch!